Molly says, "Please don't take your organs to heaven. Heaven knows we need them here."
Be an organ donor.
Links to Sites that Deal with Organ Donation/Transplants/Heart Defects
www.unos.org United Network for Organ Sharing. Site's homepage contains a counter of the number of people currently on the Transplant waiting lists. (82,025 as of 4:22 pm on 6/23/03) Many resources, articles, etc. Data on transplant information for various states and hospitals.
www.tchin.org C.H.I.N. is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. Great resources for parents of children with heart defects - a community of support! I owe thanks to Mona, who got me in touch with transplant parents who were willing to share their experiences with me as I wrote THE MOMMY PLAN. A great big THANK YOU goes to those parents and their amazing kids.
http://www.core.org/home.html CORE - Center for Organ Recovery & Education - Located in Pittsburgh, PA, this is just one of many OPO's (Organ Procurement Organizations) located around the country. Great information about organ donation/transplants on their website.
http://www.organdonor.gov/opo.htm A listing of Organ Procurement Organizations all around the United States.
www.lifegift.org An OPO in Texas with excellent information, including regarding transplants within the Spanish communities. Website has a mirror site that's in Spanish.
http://organtx.org/card.htm An on-line organ donor card you can print and fill out. Or you can send me a SASE (Susan Gable, PO Box 9313, Erie, PA, 16505) and I'd be happy to send you a bookmark that has an organ donor card on the back. Make a difference!
http://www.heart-transplant.co.uk John Fisher's personal account of his heart transplant. Many F.A.Q's, information regarding children's transplants, etc. A U.K. site.
http://www.chfpatients.com/tx/transplant.htm F.A.Q. about heart transplant
http://www.campsunshine.org A summer camp for children with life-threatening illnesses and their families. I had the idea for Camp Firefly Wishes, and then I found this camp on-line. Seems like someone else not only imagined it, they built it.
http://www.campodayin.com A Mid-Western summer camp for kids (no families! Molly might like that. <G>) ages 8-16 with various heart diseases. Non-profit org.
http://www.campdelcorazon.org Another camping experience for children with heart disease.
http://www.hlhsinfo.homestead.com Information for parents on HLHS - Hypoplastic Left Heart Syndrome
http://www.pediheart.org/parents/defects/HLHS.htm More information on HLHS and other heart conditions.
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